Neuroendocrine Cancer Blog – Home Page

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Ipsen presentation

NET Patient Story to over 100 Ipsen managers

Welcome to the blog site of Ronny Allan who was diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, symptoms of iron deficiency and facial flushing (Carcinoid Syndrome). In this blog, Ronny discusses various aspects of his cancer, his treatment, and his daily life in terms of changes he had to make.

Factual, educational and the occasional pinch of humour, Ronny aims to put a positive spin on his situation. He also uses the blog to spread awareness of this unusual, less common and complex disease including any related issues. He is passionate about moving Neuroendocrine Cancer into mainstream knowledge circles. He also occasionally blogs about other cancers in the news and related general cancer issues.

Ronny’s most read blog posts can be found here or by browsing the site: Most Popular Blogs (CLICK)

He supplements his WordPress blog activity by running a Neuroendocrine Cancer Blog Facebook page. If you want to see more posts, please like this Facebook page.

Copyright © 2016 · Ronny Allan (NET Cancer Blog) – some images may also be subject to copyright

Feedback from supporters:

ccf-logoCarcinoid Cancer Foundation wrote: “Blogs by Ronny Allan are a must read!” ….and: “Ronny Allan is one of our favorite bloggers — we highly recommend his blogs. He’s a fantastic advocate for neuroendocrine cancer and is definitely raising awareness of these rare diseases” ….and: “We look forward to reading all of your posts!”

Macmillan Cancer9-17322Logo wrote:Brilliant Blogger


 601202_197495850391101_1761531058_nCancer Knowledge Network (CKN) wrote:You are a wonderful voice in cancer advocacy

 

 

 

Pheochromocytoma Support Foundation wrote “Ronny Allan is a wonderful advocate in the world of NET Cancer. We especially like him here, because he is so positive”

Northwoods NETS (Minnesota Carcinoid & Neuroendocrine Cancer Support Group) wrote: “He’s published a number of fantastic articles that take very technical topics and make them completely accessible for patients and their families to understand”

Dr Eric Liu (Internationally Recognized Neuroendocrine Tumor Surgeon) wrote: Great blog Ronny. Thank you for sharingandgreat job with the blogs. Keep up the good work

Billy wrote: “I am always happy when I get a notification (one of very few that I allow) that you have posted something new to your blog. I appreciate your honesty and your approach towards the subjects you address. I can always count on knowing that you give a fair and balanced perspective. Thanks for that

Teresa wrote: Thank you so much. We have so many “blogs” websites, etc., that seem to cause me more anxiety than help. It is so refreshing to read your blogs. I always learn something new”

Su En wrote: “I am so happy that I have found you Ronny. You are expressing exactly how I feel and I no longer feel alone. Thank you so much for sharing your knowledge and experience. Looking forward to following your NET Cancer Blog

Marilyn wrote: “Wonderfully written, poignant and, most importantly, so encouraging! Thank you!”

Dave wrote: “I’m very happy to have found your blog. You do a great job of educating without scaring”

Genevieve wrote: “It’s a very comforting thing to me! Please don’t ever stop!”

Helen wrote: “Ronny Allan’s blog is the greatest. A mine of information

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Featured Blog Posts:

Ronny’s blogs have been featured by various organisations:

Sorry, I’m not in service Guest Blog post by Macmillan.  Also featured by Cancer Knowledge Network

Go on, climb that hill!Guest Blog post by Macmillan.

Intelligent patients – just what the doctor didn’t order – Guest Blog post by Carcinoid Cancer Foundation

Colonoscopy Comedy – featured by Macmillan

A deadly cloud with a silver lining for Cancer – featured by Macmillan

Stable is my new normal – featured by Macmillan

Living with an incurable cancer – does mind over matter help? – featured by Macmillan

The following organisations have advertised Ronny’s entire blog by linking to it from their websites:

Carcinoid Cancer Foundation

PLANETS Charity

Canadian Cancer Survivor Network

Cancer Knowledge Network

The Pheochromocytoma Support Foundation

The Pheo Para Project

Big Apple NETs

Northwoods NETS (Minnesota Carcinoid & Neuroendocrine Cancer Support Group)

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Please note all information provided in this blog is Ronny’s own views and opinions and is therefore strictly for educational or discussion purposes. Moreover, it does not constitute professional medical advice, diagnosis, treatment, or care. Furthermore, it does not necessarily reflect the views or opinions of his medical team, Cancer Research UK, Macmillan, Carcinoid Cancer Foundation, PLANETS Charity, NET Patient Foundation, or any other organisation or person with whom he may be directly or indirectly associated. Full Disclaimer – click here

Please ‘Like’ Ronny’s NET Cancer Blog Facebook page  (click here and ‘Like’)

Connect with Ronny on Twitter (click)

Connect with NET Cancer Blog on Twitter (click)

Connect with Ronny on Pinterest (click)

Rules

Please note this site is totally non-profit and whilst efforts have been made to update, any reference to fund-raising found will be related a now expired and closed event.  Additionally, any referencing of organisations which have a fundraising function is for their non-fundraising technical content and is not in any way a suggestion you should donate to the organisation being referenced.  No buying or selling allowed. All posts are moderated.

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Background to my diagnosis and treatment – click here

Disclaimer – click here

Copyright © 2016 · Ronny Allan (NET Cancer Blog)

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